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CF Physician/Parent Virtual Roundtable

Parents—do you have questions left unanswered? Healthcare Professionals—do you want to know what’s most useful to your clinic patients? Access CF caregivers and healthcare professionals and get your questions answered here!

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Your Only Source for CF Education Across the Continuum of Care

Cystic Fibrosis Learning Center (CFLC) fills a unique educational gap—the critical need for team-based education to include CF physician specialists, allied healthcare professionals, patients, family members, and other caregivers.

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  • Vertex: The Best Of The Companies Investing In Cystic Fibrosis
    02/21/12
    Imagine assembling a child's first bike. After hours of diligently following the instructions, you send your little one off, excited to try it out. Unbeknownst to you, the instructions contained an error and the bike was not assembled correctly. You watch your little one take a tumble off the malfunctioning bike, thankful for helmets, knee pads and band-aides, and vow to fix the problem. Conventional wisdom says one should find the instructions, notify the company to fix their instructions for good and rebuild the bike. For some reason, however, that is not possible at this time. Read More »
  • Clinical trial shows no cystic fibrosis benefits from clarithromycin
    02/17/12
    Despite hopes that oral clarithromycin could improve lung function in cystic fibrosis (CF) patients thanks to its immunomodulatory properties, a randomised, double-blind trial has failed to show any benefit, backing up results from two smaller studies.Over 60 CF patients were given either a placebo or 500mg of oral clarithromycin twice daily for five months, with a one-month washout. The trial was primarily designed to identify any change in lung function (FEV1 and FVC), although other endpoints included quality of life, weight, number of pulmonary exacerbations, sputum inflammatory content and nasal potential difference. Read More »